Be Part of the Change: Your Role in Advancing Sickle Cell Treatments
If you or your child have sickle cell disease or carry the sickle cell trait, you can help make a difference.
If you or your child have sickle cell disease or carry the sickle cell trait, you can help make a difference.
The Florida Sickle Cell Disease Registry collects valuable information about sickle cell disease and the sickle cell trait. This helps healthcare teams, patients, and families make informed health choices and support ongoing research. The registry was established under Section 383.147 of the Florida Statute, to improve the lives of those impacted by sickle cell disease.
By joining the registry, you help provide a clearer picture of what it’s like to live with sickle cell disease or the sickle cell trait. Your participation helps experts:
For more information about opting out of Florida’s Sickle Cell Registry, please contact the Florida NBS Follow-up Program:
For more information about The Registry or if you have any questions, please contact us: